WEST VIRGINIA Affordable Care Act - Health Insurance For those With Preexisting Conditions Women's Health Center of West Virginia, Charleston, WV
Sunday, 15 July 2012 | 1127 hits
52. Wyoming
WYOMING Affordable Care Act - Health Insurance For those With Preexisting Conditions
Sunday, 15 July 2012 | 1193 hits
A BIG SUCCESS! LYNCH SYNDROME PUBLIC AWARENESS DAY ON MARCH 22, 2012 Many involved with Lynch syndrome from survivors to previvors, to caretakers, to medical professionals, to researchers, institutions, elected leaders and community cancer advocates and organizations stood together to make this the biggest day ever! Thirty-five governors of the United States recognized or proclaimed Lynch Syndrome Public Awareness Day. This was so very important as no other cancer condition is so very treatable as most the cancers of Lynch syndrome and in doing so, we believe these actions of public awareness will not only assist in decreasing the incidents of cancers in those with Lynch syndrome, but will protect families and will save lives. Major institutions such as Sloan Kettering and Northshore Health Systems to the smaller institutions of Sarasota Memorial Hospital, Sutter Health Systems in California and many others celebrated this day with public awareness programs. Congressional Representative Ed Towns from Pennsylvania read information about Lynch syndrome into the Congressional Record, educating our elected representatives and Congressional member John Garamendi awarded Lynch Syndrome International with an award for our efforts. Tens of thousands of brochures were distributed by volunteers working from a grass roots level, to medical providers and members of the general public. Across the nation, individuals wore blue commemorating the day as over a hundred thousand radio spots played information on Lynch syndrome and dozens of newspaper articles and internet blogs addressed Lynch syndrome. Individual medical offices displayed posters and passed out was the single most biggest day in the history of Lynch syndrome! And to its sucess, we are extremely grateful to the thousands of volunteers who stood up and made this day possible! TOGETHER, WE CAN SAVE LIVES AND PROTECT FAMILIES FROM THE DEVASTATING CANCERS OF LYNCH SYNDROME. WE CAN AND WILL MAKE AN INCREDIBLE DIFFERENCE IN THE LIVES OF TENS OF THOUSANDS OF PEOPLE!
Thursday, 22 March 2012 | 832 hits
A TRIBUTE TO DR. HENRY T. LYNCH Lynch syndrome is about families and if anyone understands that, it is Dr. Henry T. Lynch, the founder. Today, many of us with Lynch syndrome exist, only as a result of this wonderful, caring man and his family who have given and sacrificed so very much so we and our families may live. Words can never express our gratitude but hopefully our global actions will. Our mission is to carry his mission forward for the generations to come--to work together as a team ---- survivors, previvors, medical professionals, genetics professionals, research professionals, governmental agencies, educational facilities, communities-- to find the over 600,000 individuals of which only 5% are diagnosed and to protect families and save lives from devastating cancers and to do so working within the true tradition of Dr. Henry Lynch. With Immense Gratitude For All He Has Done So Our Families May Live--- Team LSI Often referred to as the father of hereditary cancer, Lynch is a pioneer in the study of cancer and genetics. Part of the international team that discovered the location of one of two known genes involved in hereditary breast cancer, Lynch and his early cancer research significantly influenced how physicians and researchers treat and study hereditary cancers today. Lynch’s groundbreaking research in the 1960s into the medical history data of two extended families led him to the discovery of cancer family syndrome (CFS), also known as hereditary nonpolyposis colorectal cancer (HNPCC) or Lynch syndrome. Though not an actual cancer, Lynch syndrome strongly predisposes people who have this inherited defect to develop colorectal cancer as well as several other types of cancer. Lynch’s use of statistics to prove the genetic link to certain cancer types was unique from other researchers at the time. Born in Lawrence, Massachusetts on January 4, 1928, Lynch grew up in New York City. He joined the U.S. Navy at 16 using a falsified birth certificate and served in Europe, the Philippines and as a gunner on a marine ship in the Pacific during the Second World War. After being discharged from the Navy in 1946, Lynch stepped into the ring and became a professional boxer. He earned the nickname “Hammerin’ Hank” while boxing in upper New York State and in the San Francisco area. Lynch received his bachelor’s degree from the University of Oklahoma in 1951 and went on to earn his master’s degree in clinical psychology from the University of Denver in 1952. He received his doctorate degree in human genetics at the University of Texas, Austin, before completing medical school at the University of Texas, Galveston, in 1960. Lynch then interned at St. Mary's Hospital in Evansville, Ind. and completed his residency in internal medicine at the University of Nebraska College of Medicine in Omaha, Neb. Lynch was an assistant professor at the University of Texas M.D. Anderson Hospital and Tumor Institute in Houston prior to joining the Creighton University School of Medicine faculty in 1967. In 1984, Lynch established Creighton University's Hereditary Cancer Prevention Clinic, an interdisciplinary clinic that provides information and services related to hereditary cancers. He is currently chairman of Preventive Medicine at Creighton University, and the holder of the Charles F. and Mary C. Heider Endowed Chair in Cancer Research.
Wednesday, 01 August 2012 | 7074 hits
HELP WANTED Big hearted, strong willed,courageous individuals to help LSI achieve our mission or protecting families and saving lives! Minimum qualifications: Must have passion, warmth, commitment, loyalty and dedication for active, busy, exciting position. Work from your own home. Set your own hours. Up and coming organization with great coworkers. Occasional travel ! Meet new people. Terrific pay. What, no pay? Yep, no pay...EVERYONE involved with Lynch Syndrome International is a volunteer, from our Executive Board, to our Scientific Medical Board, to our Executive Director, to our Project Managers, to our Regional Representatives. We are a true, not for profit, 501(c)(3) TOTALLY volunteer organization and propel forward on people power, fueled by passion and commitment to protect families and save lives. We are seeking volunteers who are willing to fill the following volunteer positions and/or assist with one, two or even all of the following tasks: Regional Grassroots Coordinators Manage LSI Operations in your region: Facilitate the LSI Buddy to Buddy Program Facilitate Regional LSI Support Groups Arrange and Organize Relay for Life Events Conduct Regional Public Awareness Campaigns for LSI Occasional travel to regional conferences Organize Regional Fundraising Events Report Events and Activities for Newsletter Internet Communications Coordinator who, by email, will contact public agencies, organizations, medical centers, etc., to link to our website and maintain content on their sites about Lynch syndrome. Thousands of Volunteers who will Act as buddies to newly diagnosed previvors and survivors Work with LSI at four annual public awareness events Open up your hearts and your souls to journalists for public awareness events Participate in educational outreach events such as Relay for Life and local conventions. Distribute LSI publications to medical offices and other targeted locations. Participate in Relay for Life Events, promoting Lynch syndrome and hereditary cancers Work at local events, educating others about Lynch syndrome Participate in fundraising efforts for LSI Utilize life and learned skills to enhance the organization, including assisting in writing grants, soliciting organizations for fundraising, making radio spots, filming television ads, writing articles for newspapers, conducting studies of insurance company coverage, medical physicians volunteering services for genetic testing and for screening, researching and providing local resources for individuals with cancers, etc. There is no end to what one can do to volunteer. Lobby local lawmakers for badly needed changes Engage in organized letter writing campaigns to change guidelines and enhance screening measures. Raise funding for research Get involved in clinical trials, providing needed information to protect families and save future generations. We realize, as Survivors, sometimes the energy simply isn't as robust as our hearts and our passions. We understand, admire and respect the priorities of family, friends and simply living life to the fullest, as it should please don't volunteer more than what you can comfortably offer, without jeopardizing any other commitment in your life. There are many, many survivors who are working as hard as forty hours a week and many who can only do several hours a month. That is fine...we can all contribute in our own way...WE are the ones who will make the needed changes! Between all of us, we should be able to move mountains...and win battles...on our life and one family at a time... Please contact us in order to volunteer!
Monday, 15 February 2010 | 13925 hits
56. Minnesota
MINNESOTA Low Cost, No Cost Health Care Affordable Care Plan - Health Insurance For Individuals With Pre-existing Conditions Assured Access - Residents of Hennepin County, Minnesota (Low Cost and No Cost Health Care) Midwest Health Center For Women, Minneapolis, Minnesota Minnesota Sage Scopes Minnesota Department of Health P.O. Box 64882 St. Paul, MN 55164-0882 651-201-5618 Fax: 651-201-5601 Mayo Clinic, Minneapolis, Minnesota Mid Minnesota Family Medicine Center, St. Cloud, MN Provides Health Services on Sliding Scale Minnesota Essential Community Providers: List of providers who provide high risk, special needs and underserved individuals. Minnesota Medical Resources (List of Clinics, statewide) Neighborhood Health Care Network (Twin Cities) Portico Health Network (Low Cost Health Clinics Throughout Minnesota Serving the Uninsured) Sage Screening Center (Breast and Cervical Screening) Health Care Assistance and Prescription Medication Assistance Through the Minnesota Department of Health Bridge to Benefits --Assistance with Health Care Costs (see under Subsistence) American Cancer Society Minnesota University of Minnesota Cancer Center Myriad Genetics (Provides Assistance For Genetic Testing) Financial Assistance Angel Foundation Available to those in the 7 metro counties of Minnesota, gives up to $600 grants to assist with subsistence. Andrew and Abby Szott Foundation Community Emergency Assistance Program Intercongregation Communities Association Jewish Family and Children's Services (Loans up to $7500) North Memorial Foundation (Serving Women with women's cancers at North Memorial Hospital, Unity, Mercy, New River, and Ridgeview Medical Centers) Pay It Forward Fund to help with living expenses while undergoing treatment. Subsistence, Food, Lodging Assistance Minnesota Community Action Partnership Bridge to Benefits (Food, Clothing, Electrical Assistance, Health Care Costs etc.) Fare for All (Prepackaged Groceries 50% off) Hunger Solutions (Food Resources in Minnesota - database of programs that can help.) Salvation Army (Grocery, Housing and Heating Assistance) Twin Cities United Way Open Arms (Delivers Free Meals) Intercongregation Communities Association Housing and Foreclosure Assistance Minnesota Homeownership Center: or (metro) 651-659-9336 or (greater MN) 866- 462-6466 Minnesota Housing Finance Agency: or 800-657-3769 Federal Reserve: US Department of Housing and Urban Development: or 800-569-4287 FDIC Foreclosure Prevention: Hope for Homeowners or 888-995-HOPE (4673) Federal Housing Administration Prescriptions Minnesota RX Connect Support Crisis Connection (Confidential Crisis Counseling) 24-hour crisis counseling by telephone; 866-379-6363 or 651-379-6363 Caring Bridge Its Still Me (Wig Studio) Kids Konnected Support, Camp and Hot Line for Kids Minnesota Ovarian Cancer Alliance Pathways Well Spouse Foundation (Support for Spouses) Well Spouse Support Group 952-938-0617 Well Within (Holistic Support) Teen Outreach Updated 8/7/2012
Sunday, 15 July 2012 | 1732 hits
57. Maine
MAINE BE CERTAIN TO REVIEW OUR LINKS CONNECTING TO NATIONAL RESOURCES AS WELL AS THESE STATE RESOURCES In Maine, the top cancer resources are through Maine Health...a wonderful comprehensive website. Health Services Affordable Care Act - Health Insurance for Individuals With Prexisting Conditions No Cost and Low Cost Surveillance Testing and Treatment Resources Mabel Wadsworth Women's Health Care Maine Colorectal Cancer Control Program Maine Comprehensive Cancer Control Program 286 Water Street 11 SHS, 5th Floor Augusta, ME 04330 1-877-320-6800 Colorectal Cancer Screening Low Cost-No Cost Maine Free Clinics Biddeford Free Clinic and Dental Wellness Center 282-1138 189 Alfred St Biddeford, ME 04005 Open Mon. and Thurs., 6PM to 9PM Patients must be uninsured. Must be a patient of the clinic to receive dental services. Ellsworth Free Clinic 667-7953 248 State St., Suite 16 Ellsworth, ME 04605 Patients must be uninsured. Call for an appointment. Knox County Health Clinic 594-6996 Bok Medical Arts Building 22 White Street, Rockland, ME 04841 Open Weds., 6PM-9PM. Must make an appointment. Must meet income guidelines for free care. Leavitt’s Mill Health Center 929-6455 63 Main St., Bar Mills, ME 04004 By appointment only. Medical clinic, mental health counseling, and physical therapy. Must be uninsured. Oasis Health Center 721-9277 58 Baribeau Drive, Brunswick, ME 04011 (at Mid Coast Hospital) Open Tuesday, by appointment only. Must be uninsured, without a doctor, live in the greater Bath-Brunswick area and meet income guidelines. Portland Community Free Clinic 874-8982 103 India St, Portland, ME 04101 Open Monday 6PM-9PM, Tuesday 1-3PM and 6-8PM Serves ages 18-64 only. Must make an appointment. Must be uninsured, without a doctor, live in Cumberland County and meet income guidelines. Maine Sliding Scale Clinics Androscoggin County: • Community Clinical Services, Lewiston, Auburn, Poland and Lisbon Falls - 777-8899 • DFD Russell Medical Center, Leeds - 524-3501 Turner - 225-2676 • Western Maine Family Health, Livermore Falls - 897-4345 Aroostook County: • Center for Women & Children’s Health, Caribou - 492-3451 • Pines Health Services, Caribou - 498-2359 Caribou Family Health - 498-6921 Limestone - 328-4631 Presque Isle Family Health - 769-2025 Van Buren - 868-2796 • Fish River Rural Health, Eagle Lake - 444-5384 Fort Kent - 834-3971 • Katahdin Valley Health Center, Primary Care, Houlton - 521-0022 • Katahdin Valley Health Center, Island Falls - 463-3600 Cumberland County: • Portland Community Health Center, Portland - 482-5000 • Health Care for the Homeless, Portland - 756-8254 Franklin County: • Mt. Abram Regional Health Center, Kingfield - 265-4555 • Rangeley Family Medicine, Rangeley - 864-3303 • Strong Area Health Center, Strong - 684-4010 Hancock County: • Bucksport Regional Health Center, Bucksport - 469-7371 Kennebec County: • Belgrade Regional Health Center, Belgrade - 495-3323 • DFD Russell Medical Center, Monmouth - 933-9646 • Lovejoy Health Center, Albion - 437-9388 • Maine Migrant Health Program, Augusta (statewide) - 622-9252 Knox County: • Islands Community Medical Center, Vinalhaven - 863-4341 Lincoln County: • St. Andrews Hospital Family Care, Boothbay Harbor - 633-7820 • Sheepscot Valley Health Center, Coopers Mills - 549-7581 • Miles Family Medicine, Damariscotta - 563-4383 • Lincoln Medical Partners Family Med., Waldoboro - 832-6394 Oxford County: • Bethel Family Health Center, Bethel - 824-2193 • Sacopee Valley Health Center, Porter - 625-8126 • Elsemore-Dixfield Center, Dixfield - 562-4226 • Swift River Health Center, Rumford - 369-0146 Penobscot County: • Health Access Network - 794-6700 Lincoln, Medway-Hamlin, West Enfield and Millinocket • Helen Hunt Community Health Center, Old Town - 827-6128 • Penobscot Community Health Center, Bangor - 945-5247 Bangor - Pediatrics - 947-0147 • Stillwater Family Medicine, Bangor - 947-0768 • Capehart Community Clinic, Bangor - 992-2295 • Summer St. Community Clinic, Bangor - 992-2636 • Brewer Community Clinic, Brewer - 989-1567 • Corinna Family Practice, Corinna - 278-3238 • Katahdin Valley Health Ctr. Primary Care, Patten - 528-2285 • Katahdin Valley Health Center, Millinocket - 723-6551 Island Falls - 463-3600 • Sebasticook Family Doctors, Newport - 368-5189 Dexter - 924-5200 • Dexter Family Practice, 924-7349 Piscataquis County: • Sebasticook Family Doctors, Dover-Foxcroft - 564-8710 • Health Access Network, Dover-Foxcroft - 564-4464 • Milo Family Practice, Milo - 943-7752 • Guilford Medical Associates, Guilford - 876-3547 Sagadahoc County: • Richmond Area Health Center, Richmond - 737-4359 Somerset County: • Bingham Area Health Center, Bingham - 672-4187 • Sebasticook Family Doctors, Pittsfield- 487-9244 • Sebasticook Family Doctors, Canaan - 474-6990 • Sebasticook Family Doctors, Hartland - 938-2408 • Madison Area Health Center, Madison - 696-3992 Waldo County: • Islesboro Health Center, Islesboro - 734-2213 • Donald S. Walker Memorial Health Clinic, Liberty - 589-4509 • Arthur Jewell Community Health Center, Brooks, ME - 722-3488 • Stockton Springs Regional Health Center, Stockton Springs - 567-4000 Washington County: • Arnold Memorial Medical Center, Jonesport - 497-5614 • Regional Medical Center at Lubec, Lubec - 733-5541 East Machias - 255-0102 • East Grand Health Center, Danforth - 448-2347 • Eastport Health Care, Eastport - 853-6001 Machias - 255-3400 • Harrington Family Health Center, Harrington - 483-4502 • St. Croix Regional Family Health Ctr., Princeton - 796-5503 • Whiting Bay Family Medicine, Whiting Bay - 733-2900 • Family Medicine, John Gaddis, M.D., Machias - 255-3338 • Pleasant Point (Indian Health Facility), Perry - 853-0644 • St. Croix Regional Health Center, Princeton - 796-5503 York County: • York County Community Health Care, Sanford - 490-6900 Financial Services Wigs - Free or Reduced - Empire Beauty School, Portland, Maine Information and Referral Services, South Portland, Maine Medical Supplies Free Or Reduced Cost, Alpha One Medical, South Portland, Maine Ulman Cancer Fund For Young Adults The Scholarships And Grants for Young Cancer Survivors NORD Patient Assistance For Rare Diseases Andre Sobel River of Life Foundation, Assists single caregivers in financial crisis with assistance for their children Consumers for Affordable Health Care York Hospital - Center For Community Health Community Clinical Services - Lewiston, Auburn Franklin Community Health Network, Farmington, ME Maine Care - Medicare Low Cost -No Cost Health Care For Low Income Families Netwish - Financial Assistance Up to $500 Patient Services Incorporated - Financial Assistance With Co-Pays and Premiums Cancer Financial Assistance Coalition Assists with Health Care Costs and Co Pays Cancer Care CoPay Assistance Foundation Transportation and Lodging Amtrak - One way ($10) or round trip ($20) discounted tickets for patient and one care person for medical treatment to Boston or Woburn, expires end of 2012... Travel and Lodging Resources From the Maine Health Cancer Resource Center Ryan J. Thomas Fund, Gas Lodging and Meal Needs for Young Adults Locating Health / Cancer Care Find A Doctor Find A Hospital Support My - Free family websites for those with cancer Planet Cancer Support For Young Adults Immerman Angels Offering one one one peer support I'm Too Young For This - Support for young adults (Stupid Cancer affiliate) Group Loop - Support For Teens Cancer Legal Assistance Immigrant Legal Advocacy Project (ILAP) Providing expert immigration law information and legal assistance for free and low cost to Maine’s low-income immigrants and their U.S. citizen family members. Contact: 207- 780-1593 Cancer Legal Line A national organization created to help with many legal and financial issues. Pine Tree Legal Low or no cost legal services for those eligible. Contact: 207-774-8211 Maine Legal Services for the Elderly Low or no cost legal services for those who are 60 and over and are struggling to pay bills. Contact: 1-800-750-5353 Maine Equal Justice Partners Low or no cost legal services for those who are socially and economically disadvantaged. Contact: 207-626-7058 or 866-626-7059 Maine Volunteer Lawyers Project Low or no cost legal services. You must complete an interview to determine whether or not you are eligible. Contact: 207-774-4348 or 1-800-442-4293 Updated 8/7/2012
Sunday, 15 July 2012 | 1471 hits
Wednesday, 08 August 2012 | 545 hits
JOIN TEAM AUSTRALIA! and the tremendous public awareness venture they sponsored at the Brisbane Australia Relay for Life event. They are rocking and sure do have a lot of fun!!! If you wish to be involved with LSI Australia, simply contact Beth at . Yep, I would say she was "blue!" Lynch syndrome blue!!!!! And she was sure had fun! Boy, those Aussies sure know how to LIVE!!!!! Just look at all those beautiful families! If you look close, you probably know them! In fact, they spent many years with us in our living rooms and upon our television sets. Heck, we grew up together, learning family was the most important aspect of life and the root of our existence. From them, we learned just what family means and how very special it is. And when you think about it, despite coming in different sizes, colors, religions and cultures, our families are not very different from one another...we have all the same hopes and fears and dreams for our children...that they will be happy and safe and healthy... So, who couldn't fall in love with this great group of Lynch syndrome families? These folks are making a difference down under by standing up and making their lives count... Finally...not only did they play together, but memorialized those family members not present -- who left this world far before their time. Many have sustained tragic losses of those they loved to cancer...however, those of us with Lynch syndrome, most likely, have become masters in memorializing the many members of our individual families, whom we have loved and who left us, needlessly--especially since there does exist a cost effective solution which is almost the equivalent to a cure...hopefully someone will get the clue and across the board testing will become an everyday part of life, so we and our families can live...huh? Each lit bag represents a loved one lost to cancer. This powerfully indicates the seriousness of Lynch syndrome, with more lit bags than survivors and previvors and their family members. TEAM AUSTRALIA! WE LOVE YOU AND YOUR PASSION!
Friday, 03 August 2012 | 510 hits
Dr. Clement R. Boland, known as "Rick " Boland, brings to the Lynch Syndrome International Medical Advisory Board an extremely wide perspective of Lynch syndrome--that of a physician and researcher and that of living within a family that has sustained inherited cancer. Born on October 19, 1947 and growing up in Endwell, New York, he went on to graduate from Notre Dame University and, as his father, pursue medicine, graduating from the Yale School of Medicine in 1973. Dr. Boland was one of the very first early researchers of Lynch syndrome writing his medical degree thesis on inherited cancer in 1972, and as with Dr. Lynch, remained persistent in research of families with inherited cancers despite popular medical opinion, at that time, that cancer was not inherited. At that time, Dr. Boland contacted Dr. Lynch, who one year earlier, had published a story in "Cancer" and described a family very much like Dr. Boland's. The rest is history and as a result many lives have been saved as a result of his dedication, tenacity and passionate research. We are extremely fortunate to have Dr. Boland on our Medical Advisory Board. He is open and has a keen understanding of Lynch syndrome survivors and Lynch syndrome families, as well as a very down to earth, effective form of communication in relaying information to individuals without medical backgrounds. Besides being a terrific guy, he's a great researcher and a wonderful doctor. We are truly blessed and owe Dr. Boland a debt of gratitude for the contributions he has made which have contributed to sustaining our lives. More about Dr. Boland Publications by Dr. Boland
Saturday, 27 February 2010 | 1373 hits

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