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| Article Index |
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| Survivors and Previvors |
| The Diagnosis Process |
| Surveillance Testing |
| Treatment of Lynch Cancers |
| Lynch Syndrome and the Family |
| Preparing for Treatment |
| Lynch Cancers |
| The Diagnosis |
| Accepting The Diagnosis |
| Choosing Your Physicians |
| Diet |
| Diet Tips |
| Exercise |
| Skin and Hair |
| Anti-Discrimination |
| Managing Treatment |
| All Pages |
Photo - Courtesy of Cops for Cancer
Courage is not the absence of fear but rather the judgment that something else is more important than fear. ~Ambrose Redmoon
SURVIVAL 101
This section is for us, who are at high risk for Lynch cancers, as well as for those who care for us. These pages are intended as a road map, created by those who have been through the process and designed to assist others, who, hopefully, will pass the information on and continue paying it forward so families will be protected and lives can be saved.
Today's physicians are under more stress than ever before. With a shortage of general practitioners nationwide and demands upon their time, as well as a lack of awareness and education about Lynch syndrome, they don't have the time or the background knowledge to answer the numerous detailed questions of the affected individual. Lord knows we not only have a lot of questions and a considerable need for aggressive treatment by our medical professionals.
Most of us don't care about molecules interfacing with other molecules, the length of the strands of DNA within chromosones and the scientific factors of the specific mutations. Our needs are far more basic. In the world, there are enough languages, without us having to learn and understand medical and scientific terminology. Essentially, what we want to know is:
- Do we have Lynch syndrome?
- What is the effect upon my family members and my children?
- Are we going to get the cancers?
- What are the odds of survival?
- Am we going to die?
- At what age will we get the cancers, if we do?
- What can we do to help deter cancers from occurring?
- Is there affordable treatment for it?
- What is that treatment?
- Are there any long termed effects?
- How do I find a good physician who knows how to care for us?
- What do I do to prepare for treatment?
- How can I protect ourselves and our family?
- Will it affect our ability to get insurance?
- Will our health insurance premiums increase?
- Can we get life insurance?
- Will we be discriminated against?
- Does our specific mutation put us at a higher risk for a certain cancer?
- How can we prepare emotionally for a lifetime of living with Lynch syndrome?
- Are there resources for us to get assistance?
- What annual tests do we need in order to stay alive?
- How do we adapt and learn to live with this?
- How do we tell my family about this inherited syndrome?
- How will this change our lives?
This section is intended to assist one another through the myriad of processes, the hundreds of questions and the fears of the unknown encountered during the journey of traveling through life with Lynch syndrome.
Hopefully, many of these questions will be answered. If not, please don't hesitate to This e-mail address is being protected from spambots. You need JavaScript enabled to view it We are here for one another. That is what Lynch Syndrome International is all about...caring for one another, protecting families and saving lives.