Lynch Syndrome Australia/New Zealand

In Australia and New Zealand the Registries provide referrals and resources.

  • They offer specialist management advice to assist with care

  • They clarify the family's risk for developing bowel or other gastrointestinal cancers by confirming family history

  • They faciliteate genetic testing where appropriate

  • They determine if persons and families would beneift from regular screening to prevent cancer

  • If determined to be at high risk for developing gastro intestingal cancers, they coordinate bowel screenings.

  • They provide information for families on familial GI Cancer.

Cancer Council of Western Australia - AU

Understanding Genetic Testing - AU

Australian Specific Study of MSH6 and PMS2 Mutations in Australian Families - AU

Family Matters - Newsletter of the NSW and ACT Hereditary Cancer Registry - AU

HNPCC Guide by the NSW Government of Australia -AU

Genetic Services for Western Australia - AU

Center for Genetics Information - AU

Genetic Counseling Services - AU

Family Cancer Services - AU

Office of Population Health Genomics - AU

Cancer Institute NSW - AU

Cancer Council Victoria - AU

Genetic Testing and Life Insurance in Australia -AU

Human Genetics Society of Australasia - AU

NSW and ACT Cancer Registries - AU

Australian - New Zealand Clinical Trials - AU, NZ

Guide to Health Care Professionals - Bowel Cancer - AU - AU

Australian Cancer Trials ( -AU

Cancer Council -AU

Cancer Council of South Australia -AU


Genetic Services of Western Australia -AU

Women's and Children's Hospital Familial Cancer Unit -AU

Peter Mac Familial Cancer Center -AU

Cancer Registries in Australia and New Zealand -AU

Clinical Oncological Society of Australia -AU

Cancer Australia -AU

Family Cancer Clinics in Australia -AU

Australia Clinical Practice Guidelines for Familial Cancer -AU

Centre for Genetics Information NSW -AU

Queensland Institute of Medical Research -AU

Family Cancer Clinics -AU

Gynecological Cancers Resources -AU

Cancer Care Resource Search Engine -AU

South Australia - Find A Genetic Counselor -AU

Australian Capital Territory Government Health Portfolio -AU

Australian Department of Health and Ageing -AU

South Australia Department for Families and Communities -AU

South Australian Department of Health -AU

Department of Health - Western Australia -AU

Department of Human Services -Victoria

New South Wales Health -AU

Australia New Zealand Hereditary Cancer Registry -AU   - NZ

This email address is being protected from spambots. You need JavaScript enabled to view it. Pathological Testing MSI - HNPCC  -NZ

New Zealand Genetic Testing Paper -NZ

New Zealand Familial Gastrointestinal Registry -NZ

Cancer Society of New Zealand -NZ

Cancer Genetics Laboratory - NZ

Aukland Gastroenterology Associates - NZ

New Zealand Cancer Control Trust -NZ

National Cancer Information Network -NZ (Restricted to Healthcare Professionals)

Health and Disability Commissioner -NZ  (Medical Board)

Hospice New Zealand -NZ

New Zealand Medical Association -NZ

Webhealth -NZ  (Health Resources in New Zealand)

Aukland District Health Board, New Zealand


Professional Associations:

Human Genetics Society of Australasia (HGSA)

Australian Society of Genetic Counsellors

Genetic Society of Australia (GSA)


School of Biomedical Sciences and Pharmacy, University of Newcastle, NSW 2308, Australia

Hunter Medical Research Institute, John Hunter Hospital, Newcastle, NSW 2305, Australia

Hunter Area Pathology Service, Hunter New England Area Health, NSW 2305, Australia

Hunter Family Cancer Service, Hunter New England Area Health, NSW 2305, Australia

University of NSW, St Vincent's Hospital Clinical School, Sydney, NSW 2010, Australia

Hunter Medical Research Institute, New Lambton Heights, NSW, Australia

Molecular Genetics, HAPS, New Lambton Heights, NSW, Australia

Princess Margaret Children's Hospital, Perth, WA 6000 Australia

Familial Cancer Clinic, Royal Melbourne Hospital, Victoria, Australia

Peter MacCallum Cancer Centre (PMC), Victoria, Australia

Genetic Health Services Victoria (GHSV), Australia;

Familial Bowel Cancer Clinic, Royal Melbourne Hospital (RMH), Australia;



University of Auckland, Auckland, Aotearoa New Zealand

University of Otago, Dunedin, Aotearoa New Zealand



For Young Adults - Australia