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                             Photo - Courtesy of Cops for Cancer

 

Courage is not the absence of fear but rather the judgment that something else is more important than fear.  ~Ambrose Redmoon

 

 

SURVIVAL 101

 

This section is for us, who are at high risk for Lynch cancers, as well as for those who care for us.  These pages are intended as a road map, created by those who have been through the process and designed to assist others, who, hopefully, will pass the information on and continue paying it forward so families will be protected and lives can be saved.

 

Today's physicians are under more stress than ever before.  With a shortage of general practitioners nationwide and demands upon their time, as well as a lack of awareness and education about Lynch syndrome, they don't have the time or the background knowledge to answer the numerous detailed questions of the affected individual.  Lord knows we not only have a lot of questions and a considerable need for aggressive treatment by our medical professionals.

Most of us don't care about molecules interfacing with other molecules, the length of the strands of DNA within chromosones and the scientific factors of the specific mutations. Our needs are far more basic.  In the world, there are enough languages, without us having to learn and understand medical and scientific terminology. Essentially, what we want to know is:

  • Do we have Lynch syndrome?
  • Are we or our loved ones going to get the cancers?
  • Are we or our family members going to die?
  • At what age will we get the cancers, if we do?
  • What can we do to help deter cancers from occurring?
  • Is there affordable treatment for it and if so, what is it?
  • How do I find a good physician who knows how to care for us?
  • What do I do to prepare for treatment?
  • Will it affect our ability to get life insurance or will my current health insurance increase?
  • Will we be discriminated against?
  • Are there resources for us to get assistance?
  • What do we need to do to protect ourselves?
  • How do we adapt and learn to live with this?
  • How will this change our lives?

There are a lot of questions when one is diagnosed.  It is a time of uncertainty, of being diagnosed...and especially if one is facing with the challenge of recovering from a cancer.

This section is intended to assist one another through the myriad of processes, the hundreds of questions and the fears of the unknown encountered during the journey of traveling through life with Lynch syndrome.  If you have a question and need need, just call... 702-298-3911.  We are here for you.

Hopefully, many of these questions will be answered. We are here for one another. That is what Lynch Syndrome International is all about...caring for one another, creating public awareness of Lynch syndrome, educating medical professionals and protecting families and saving lives.

 

Modified 5/20/2014