Lynch syndrome is a family matter and is passed down through families. Following diagnosis of Lynch syndrome, the most loving thing any person can do is share that diagnosis with other members of their family. Its not just a loving act, its a moral act, especially since Lynch syndrome targets families and in most cases, there are ten to hundreds of other individuals who may be at risk and whose lives could be saved as a result of your diagnostic results.
There is no “how to manual” directing individuals in how to complete this process and it is often difficult and emotional and communication between each and every family is very different. Nonetheless, a gift of a diagnosis of Lynch syndrome is a gift of life. It affords individuals an opportunity to grasp control over one’s cancers